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Le portail documentaire DOCautisme
Le portail documentaire DOCautisme se donne l'ambition d’être une référence francophone sur les publications et ressources nationales et internationales consacrées aux Troubles du Spectre de l’Autisme.
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| Titre : | Characteristics associated with healthcare independence among autistic adults (2022) |
| Auteurs : | Anne LONGO, Auteur ; Daniel GILMORE, Auteur ; Jennifer GARVIN, Auteur ; J. Madison HYER, Auteur ; Daniel COURY, Auteur ; Christopher HANKS, Auteur ; Susan MOFFATT-BRUCE, Auteur ; Amy HESS, Auteur ; Brittany N. HAND, Auteur |
| Type de document : | Article : Texte imprimé et/ou numérique |
| Dans : | Research in autism spectrum disorders (95, juillet 2022) |
| Langues: | Anglais |
| Concepts : | Trouble du spectre de l'autisme ; Adulte ; Accès aux soins ; Autonomie ; Fonction exécutive ; Fonctionnement autistique |
| Index. décimale : | VIE.91 (Accès aux soins) |
| Résumé : |
Background
Healthcare independence refers to someone’s ability to assume responsibility for their own health and complete tasks like taking medication as prescribed or scheduling healthcare appointments. Prior studies have shown that autistic people tend to need more support with healthcare tasks than people with other chronic conditions. We sought to identify modifiable and non-modifiable factors linked with healthcare independence among autistic adults. Method We conducted a cross-sectional survey to examine how executive functioning skills, restrictive and repetitive behaviors, gender, education, and age were linked with healthcare independence among this population. Participants included: (a) autistic adults (n = 19) who are their own legal guardian, who participated via self-report; and (b) family members of autistic adults with a legal guardian (n = 11), who provided proxy-reports. Results Findings differed between self- and proxy-reports. Among autistic adults who self-reported, difficulties in executive functioning were strongly linked with less healthcare independence. Among proxy-reports, greater restrictive and repetitive behaviors were strongly linked with less healthcare independence. According to the proxy-reports, having not completed high school, being older during the healthcare transition, and being male were all independently linked with less healthcare independence. Conclusions Interventions aimed at supporting executive functioning, providing opportunities to increase independence with healthcare tasks, and reducing the extent to which restrictive and repetitive behaviors interfere with daily activities may be viable options for supporting healthcare independence among autistic adults. Our findings are an important first step for future initiatives to better identify individuals who need additional care coordination, supports, or services to maximize healthcare independence. [résumé d'auteur] |
| Sous-type : | Article |
| Consulter : | https://doi.org/10.1016/j.rasd.2022.101972 |
